

While eating my nutritious salad at my desk today, I read an article about our former chief justice and her husband. He is currently suffering from Alzheimer's and receives full time care in a nursing home. They said in the article that he has a new girlfriend, who also resides in the home. He doesn't remember his wife of 50+ years and seems very content now that he has found this new woman. She continues to visit him and accepts it as part of his disease. She said it was the "highest form of love."
This got me thinking about a couple of things. First of all, what would I do and how would I react, if TBW hooked up with someone because she couldn't remember me? Would I react the same way? Would I be jealous? It is such a debilitating disease and one that is horrible to live through as a patient and as a loved one.
TBW's Mother, died last year from the disease. She was in her 90's. She spent the last 15+ years declining bit by bit, to the point she couldn't remember TBW or anything about her pre-nursing home life. TBW would often get calls from the nurse who cared for her Mom. The calls came a couple times a month, but she also received letters in the mail detailing each bruise or her constant food consistancy change because she didn't know how to chew and swallow her food anymore. Constant reminders to TBW that she couldn't do anything to help her, but that she was still hanging on, not knowing who she was, where she was or how she got there.
I saw the toll it took on TBW. When she died, we traveled to Wisconsin where TBW grew up to take care of things, and to say goodbye. We saw the facility, or room, in which she spent her last years. Her nurse was a caring and loving person. I don't know how she has the grace and caring to do that job on that locked down floor for so long, but she did, and still does. I never got to see her Mom in person, but above her bed, was a framed photo of her Dad. The eyes and the mouth were familiar to the face that I love so much. TBW looks so much like her father. We have that picture in our living room now. The trip bittersweet. I was saddened for the reason for going there, but was happy to see all of the places and things TBW experienced in her childhood.
We saw the house where she grew up, went to mass at the church they went to as a family, saw the places she rode her bike, liked to eat, etc. Even met a childhood friend. Funny side bar - or so I think anyways. After mass, the nun who did the sermon (I guess they are consolidating churches there and they are short on priests) came to the back of the church. I was taking pictures, and she introduced heself to TBW. She asked her if I was her daughter? sister? To which TBW said, "This is my partner." My eyes got bigger than saucers and I shook her hand. This is small town suburbia in a "C" church... We laughed when we got in the car. Even though we were there to bury her Mom, we did enjoy seeing the sites and I loved seeing all of the places from her childhood. Details ofthe trip will be a later entry.
Then, thinking about the above article, I was thinking about my journaling, and wondering if re-reading it all and looking at pictures would help. This in turn led me to thinking about the movie, The Notebook. That was such a good movie. To be able to have a soulmate like that. To lie together in bed and die in each other's arms. How beautiful would that be?
We plan to put up our tree this weekend and have a fire or two. I hope we can have time to watch that movie together in between our other activities. I guess in the end, if we don't know each other because of the affects of disease, I know that our souls will always be connected - so it's all good.
This got me thinking about a couple of things. First of all, what would I do and how would I react, if TBW hooked up with someone because she couldn't remember me? Would I react the same way? Would I be jealous? It is such a debilitating disease and one that is horrible to live through as a patient and as a loved one.
TBW's Mother, died last year from the disease. She was in her 90's. She spent the last 15+ years declining bit by bit, to the point she couldn't remember TBW or anything about her pre-nursing home life. TBW would often get calls from the nurse who cared for her Mom. The calls came a couple times a month, but she also received letters in the mail detailing each bruise or her constant food consistancy change because she didn't know how to chew and swallow her food anymore. Constant reminders to TBW that she couldn't do anything to help her, but that she was still hanging on, not knowing who she was, where she was or how she got there.
I saw the toll it took on TBW. When she died, we traveled to Wisconsin where TBW grew up to take care of things, and to say goodbye. We saw the facility, or room, in which she spent her last years. Her nurse was a caring and loving person. I don't know how she has the grace and caring to do that job on that locked down floor for so long, but she did, and still does. I never got to see her Mom in person, but above her bed, was a framed photo of her Dad. The eyes and the mouth were familiar to the face that I love so much. TBW looks so much like her father. We have that picture in our living room now. The trip bittersweet. I was saddened for the reason for going there, but was happy to see all of the places and things TBW experienced in her childhood.
We saw the house where she grew up, went to mass at the church they went to as a family, saw the places she rode her bike, liked to eat, etc. Even met a childhood friend. Funny side bar - or so I think anyways. After mass, the nun who did the sermon (I guess they are consolidating churches there and they are short on priests) came to the back of the church. I was taking pictures, and she introduced heself to TBW. She asked her if I was her daughter? sister? To which TBW said, "This is my partner." My eyes got bigger than saucers and I shook her hand. This is small town suburbia in a "C" church... We laughed when we got in the car. Even though we were there to bury her Mom, we did enjoy seeing the sites and I loved seeing all of the places from her childhood. Details ofthe trip will be a later entry.
Then, thinking about the above article, I was thinking about my journaling, and wondering if re-reading it all and looking at pictures would help. This in turn led me to thinking about the movie, The Notebook. That was such a good movie. To be able to have a soulmate like that. To lie together in bed and die in each other's arms. How beautiful would that be?
We plan to put up our tree this weekend and have a fire or two. I hope we can have time to watch that movie together in between our other activities. I guess in the end, if we don't know each other because of the affects of disease, I know that our souls will always be connected - so it's all good.